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Title Genetic secrets : protecting privacy and confidentiality in the genetic era / edited by Mark A. Rothstein.
Imprint New Haven : Yale University Press, [1997]

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Subject Medical genetics -- Moral and ethical aspects.
Medical genetics -- Law and legislation.
Medical records -- Law and legislation.
Privacy, Right of.
Confidential communications -- Physicians.
Medical records -- Access control.
Alt Name Rothstein, Mark A.
Description 1 online resource (xvi, 511 pages) : illustrations
Bibliography Note Includes bibliographical references and index.
Note Print version record.
ISBN 0585359431 (electronic bk.)
9780585359434 (electronic bk.)
0300072511 (cloth ; alk. paper)
0300080638 (pbk.)
OCLC # 47009933
Additional Format Print version: Genetic secrets. New Haven : Yale University Press, ©1997 0300072511 (DLC) 97028439 (OCoLC)37281664
Table of Contents
 Foreword / Arthur C. Upton 
1Genes, Genomes, and Society / Leroy Hood, Lee Rowen3
2Genetic Privacy: Emerging Concepts and Values / Anita L. Allen31
3Genetic Exceptionalism and "Future Diaries": Is Genetic Information Different from Other Medical Information? / Thomas H. Murray60
4Genetic Privacy in the Patient-Physician Relationship / David Orentlicher77
5A Clinical Geneticist Perspective of the Patient-Physician Relationship / Eugene Pergament92
6Privacy in Genetic Counseling / Barbara Bowles Biesecker108
7Informed Consent and Genetic Research / Ellen Wright Clayton126
8Genetic Screening from a Public Health Perspective: Some Lessons from the HIV Experience / Scott Burris, Lawrence O. Gostin137
9Confidentiality, Collective Resources, and Commercial Genomics / Robert Mullan Cook-Deegan161
10Biomarkers - Scientific Advances and Societal Implications / Paul W. Brandt-Rauf, Sherry I. Brandt-Rauf184
11Environmental Population Screening / Jonathan M. Samet, Linda A. Bailey197
12Are Developments in Forensic Applications of DNA Technology Consistent with Privacy Protections? / Randall S. Murch, Bruce Budowle212
13DNA Data Banks / Jean E. McEwen231
14Gen-Etiquette: Genetic Information, Family Relationships, and Adoption / Lori B. Andrews255
15The Law of Medical and Genetic Privacy in the Workplace / Mark A. Rothstein281
16The Implications of Genetic Testing for Health and Life Insurance / Nancy E. Kass299
17Genetic Information in Schools / Laura F. Rothstein317
18Courts and the Challenges of Adjudicating Genetic Testing's Secrets / Franklin M. Zweig, Joseph T. Walsh, Daniel M. Freeman332
19Justice and Genetics: Privacy Protection and the Moral Basis of Public Policy / Madison Powers355
20Laws to Regulate the Use of Genetic Information / Philip R. Reilly369
21European Data Protection Law and Medical Privacy / Paul M. Schwartz392
22International and Comparative Concepts of Privacy / Sonia Le Bris, Bartha Maria Knoppers418
23Genetic Secrets: A Policy Framework / Mark A. Rothstein451
 List of Contributors497