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EBOOK
Title Genetic secrets : protecting privacy and confidentiality in the genetic era / edited by Mark A. Rothstein.
Imprint New Haven : Yale University Press, 1997.

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Subject Medical genetics -- Moral and ethical aspects.
Medical genetics -- Law and legislation.
Medical records -- Law and legislation.
Privacy, Right of.
Confidential communications -- Physicians.
Medical records -- Access control.
Alt Name Rothstein, Mark A.
Description 1 online resource (xvi, 511 pages) : illustrations
Bibliography Note Includes bibliographical references and index.
Note Print version record.
Contents I. Background. Genes, genomes, and society / Leroy Hood and Lee Rowen -- Genetic privacy : emerging concepts and values / Anita L. Allen -- Genetic exceptionalism and "future diaries" : is genetic information different from other medical information? / Thomas H. Murray. II. The health care setting. Genetic privacy in the patient-physician relationship / David Orentlicher -- A clinical geneticist perspective of the patient-physician relationship / Eugene Pergament -- Privacy in genetic counseling / Barbara Bowles Biesecker -- Informed consent and genetic research / Ellen Wright Clayton -- Genetic screening from a public health perspective : some lessons from the HIV experience / Scott Burris and Lawrence O. Gostin. III. The effect of new technology. Confidentiality, collective resources, and commercial genomics / Robert Mullan Cook-Deegan -- Biomarkers -- scientific advances and societal implications / Paul W. Brandt-Rauf and Sherry I. Brandt-Rauf -- Environmental population screening / Jonathan M. Samet and Linda A. Bailey -- Are developments in forensic applications of DNA technology consistent with privacy protections? / Randall S. Murch and Bruce Budowle -- DNA data banks / Jean E. McEwen.
IV. Nonmedical uses of genetic information. Gen-etiquette : genetic information, family relationships, and adoption / Lori B. Andrews -- The law of medical and genetic privacy in the workplace / Mark A. Rothstein -- The implications of genetic testing for health and life insurance / Nancy E. Kass -- Genetic information in schools / Laura F. Rothstein -- Courts and the challenges of adjudicating genetic testing's secrets / Franklin M. Zweig, Joseph T. Walsh, and Daniel M. Freeman. V. Ethics and law in the United States and abroad. Justice and genetics : privacy protection and the moral basis of public policy / Madison Powers -- Laws to regulate the use of genetic information / Philip R. Reilly -- European data protection law and medical privacy / Paul M. Schwartz -- International and comparative concepts of privacy / Sonia Le Bris and Bartha Maria Knoppers. VI. Recommendations. Genetic secrets : a policy framework / Mark A. Rothstein.
ISBN 0585359431 (electronic bk.)
9780585359434 (electronic bk.)
0300072511 (cloth ; alk. paper)
0300080638 (pbk.)
OCLC # 47009933
Additional Format Print version: Genetic secrets. New Haven : Yale University Press, 1997 0300072511 (DLC) 97028439 (OCoLC)37281664
Table of Contents
 Foreword / Arthur C. Upton 
 Preface 
1Genes, Genomes, and Society / Leroy Hood, Lee Rowen3
2Genetic Privacy: Emerging Concepts and Values / Anita L. Allen31
3Genetic Exceptionalism and "Future Diaries": Is Genetic Information Different from Other Medical Information? / Thomas H. Murray60
4Genetic Privacy in the Patient-Physician Relationship / David Orentlicher77
5A Clinical Geneticist Perspective of the Patient-Physician Relationship / Eugene Pergament92
6Privacy in Genetic Counseling / Barbara Bowles Biesecker108
7Informed Consent and Genetic Research / Ellen Wright Clayton126
8Genetic Screening from a Public Health Perspective: Some Lessons from the HIV Experience / Scott Burris, Lawrence O. Gostin137
9Confidentiality, Collective Resources, and Commercial Genomics / Robert Mullan Cook-Deegan161
10Biomarkers - Scientific Advances and Societal Implications / Paul W. Brandt-Rauf, Sherry I. Brandt-Rauf184
11Environmental Population Screening / Jonathan M. Samet, Linda A. Bailey197
12Are Developments in Forensic Applications of DNA Technology Consistent with Privacy Protections? / Randall S. Murch, Bruce Budowle212
13DNA Data Banks / Jean E. McEwen231
14Gen-Etiquette: Genetic Information, Family Relationships, and Adoption / Lori B. Andrews255
15The Law of Medical and Genetic Privacy in the Workplace / Mark A. Rothstein281
16The Implications of Genetic Testing for Health and Life Insurance / Nancy E. Kass299
17Genetic Information in Schools / Laura F. Rothstein317
18Courts and the Challenges of Adjudicating Genetic Testing's Secrets / Franklin M. Zweig, Joseph T. Walsh, Daniel M. Freeman332
19Justice and Genetics: Privacy Protection and the Moral Basis of Public Policy / Madison Powers355
20Laws to Regulate the Use of Genetic Information / Philip R. Reilly369
21European Data Protection Law and Medical Privacy / Paul M. Schwartz392
22International and Comparative Concepts of Privacy / Sonia Le Bris, Bartha Maria Knoppers418
23Genetic Secrets: A Policy Framework / Mark A. Rothstein451
 List of Contributors497
 Index501


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