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Author Vaidya, Shubhangi,
Title Autism and the family in urban India : looking back, looking forward / Shubhangi Vaidya.
Imprint [Place of publication not identified] : Springer, [2016]

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Author Vaidya, Shubhangi,
Subject Autism -- India.
Autism in children -- India.
Parents of children with disabilities -- India.
Description 1 online resource
polychrome rdacc
Bibliography Note Includes bibliographical references.
Contents Preface; Contents; About the Author; 1 Mapping the Terrain: Examining Discourses on Disability and the Family; Abstract; 1.1 Introducing the Book; 1.2 Defining Disability; 1.3 Perspectives on Disability: The Impaired Body and the Disabling Society; 1.3.1 Disability and the Medical Model; 1.3.2 Disability and Social Stigma; 1.3.3 Emergence of the Social Model; 1.3.4 Disability and Embodiment; 1.4 Perspectives on Intellectual/Mental Disabilities; 1.4.1 Intellectual Disability and Culture; 1.5 Disability and the Family: Changing Discourses and Practices; 1.5.1 Disability and the Family in India.
1.6 The History of Autism: Evolution of a Category1.6.1 Kanner and Asperger: Foundational Insights; 1.6.2 Psychoanalytical Perspective: Refrigerator Mothers and Damaged Children; 1.6.3 Re(de)fining the Category; 1.7 Autism in a Cross-Cultural Perspective; 1.7.1 Autism in India; 1.8 Overview of the Book; References; 2 "There Is Something Wrong with My Child": Encounter with Autism; Abstract; 2.1 Symptom Recognition and Atypical Development; 2.2 Diagnosis Stories: Seeking Answers; 2.3 Dealing with Diagnosis: From Despair to 'Acceptance'; 2.4 Case Studies.
2.5 Making Sense of the Disability: Cultural Models of Disability2.6 Multiple Meanings of Autism; 2.6.1 Discussion: Contradictory Constructions of a Complex Condition; 2.7 Autism and Everyday Life: Accounts of Family Routines; 2.7.1 Divya and Her Family: Sharing Roles and Responsibilities; 2.7.2 Aashu and His Family: Engagement and Inclusion; 2.7.3 Discussion: Constructing Disability Through Everyday Practices; References; 3 Unending Care and an Uncertain Future: The Challenges of Parenting a Child with Autism; Abstract; 3.1 The Challenges of Parenting a Child with Autism.
3.2 Perspectives on Motherhood3.3 Experiences from Fieldwork; 3.4 Mothering as Ideology and Practice; 3.5 Entrapment and Empowerment: Experiences of Motherhood; 3.5.1 Discussion: Disability, Personhood and Gender; 3.6 Fatherhood and Disability: Encounters and Experiences; 3.6.1 Discussion: Patriarchy, Technology, Globalization; 3.7 The Impact of Disability on the Marital Relationship; References; 4 Shrinking Circles of Support: The Urban Family in Transition; Abstract; 4.1 Sibling Relations and Disability: Key Themes.
4.1.1 'Someone to Call One's Own': The Importance of Siblings in the Life of a Child with Disability4.1.2 Making Sense of the Sibling's Disability; 4.1.3 The 'Burden of Competence'; 4.1.4 Supporting Siblings; 4.2 The Experiences of Grandparents; 4.2.1 Responses of Grandparents: An Overview; 4.2.2 Findings from Fieldwork; 4.3 Responses of the Extended Family: Support and Stigma; 4.4 Family, Neighbourhood and Community; References; 5 Disability, Society and State: New Mobilizations and Movements; Abstract; 5.1 The Social World of Disability: Mobilizations in the Urban Space.
Summary The book explores the lived reality of parenting and caring for children with autism in contemporary urban India. It is based on a qualitative, ethnographic study of families of children with autism as they negotiate the tricky terrain of identifying their child's disability, obtaining a diagnosis, accessing appropriate services and their on-going efforts to come to terms with and make sense of their child's unique subjectivity and mode of being. It examines the gendered dimensions of coping and care-giving and the differential responses of mothers and fathers, siblings and grandparents and the extended family network to this complex and often extremely challenging condition. The book tackles head on the sombre question, What will happen to the child after the parents are gone? It also critically examines the role of the state, civil society and legal and institutional frameworks in place in India and undertakes a case study of Action for Autism; a Delhi-based NGO set up by parents of children with autism. This book also draws upon the author's own engagement with her child's disability and thus lends an authenticity born out of lived experience and in-depth understanding. It is a valuable addition to the literature in the sociology of the family and disability studies.
Note Print version record.
ISBN 9788132236078 (electronic bk.)
8132236076 (electronic bk.)
OCLC # 959980155
Additional Format Print version: Autism and the Family in Urban India. [Place of publication not identified] : Springer Verlag 2016 9788132236054 (OCoLC)950952690

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