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Author Tuffrey-Wijne, Irene, 1963-
Title Living with learning disabilities, dying with cancer : thirteen personal stories / Irene Tuffrey-Wijne ; foreword by Sheila Hollins.
Imprint London ; Philadelphia : Jessica Kingsley Publishers, 2010.

Subject Cancer -- Patients -- Great Britain -- Biography.
Learning disabled -- Great Britain -- Biography.
Mentally Disabled Persons.
Terminal Care.
Description 1 online resource (272 pages)
Bibliography Note Includes bibliographical references and index.
Note Print version record.
Contents FRONT COVER; Living with Learning Disabilities, Dying with Cancer:Thirteen Personal Stories; Contents; ACKNOWLEDGEMENTS; Foreword by Professor Sheila Hollins; PREFACE; Chapter 1:Three Stories; John Davies; Vincent Sweeney; Nick Ballard; Chapter 2: Diagnosis and Treatment; Lily Lamb; The cancer diagnosis; Cancer treatments; Summary; Chapter 3:Truth-telling and Understanding; Lily Lamb's understanding of cancer; Were people told the truth?; Understanding cancer and dying; Sally Burnett: 'Don't tell her'; Breaking bad news; Summary; Chapter 4:Family and Friends; Lily Lamb and her family
The importance of familiesPete Carpenter and his sister Daphne; Friends; Summary; Chapter 5:Unprepared Services, Inexperienced Carers; Lily Lamb and her carers; Pete Carpenter and his carers; Services were not prepared for death; The emotional impact of caring; Health care professionals; Summary; Chapter 6:Dependent Lives; The story of Lily Lamb's life; Deprivation and dependence; Forced jollity; The importance of listening; Summary; Chapter 7:Resilience; Richard Horwood: 'Don't ever give up'; The features of resilience; Summary; Chapter 8:Dying and Beyond; Lily Lamb's death; Dying; Funerals
Grieving and rememberingSummary; Chapter 9:Learning Lessons; What did people want and need?; Conclusion; APPENDIX 1: THE PEOPLE IN THIS BOOK; APPENDIX 2: METHODS; ENDNOTES; RESOURCES; REFERENCES; INDEX
Summary This book is a powerful and moving account of the experiences of 13 people with learning disabilities who were living with cancer. The author gained a unique understanding of what it is like for individuals with learning disabilities to live with deteriorating health and how this may impact upon their families, friends and carers.
ISBN 9780857002006 (electronic bk.)
0857002007 (electronic bk.)
OCLC # 682621358
Additional Format Print version: Tuffrey-Wijne, Irene, 1963- Living with learning disabilities, dying with cancer. London ; Philadelphia : Jessica Kingsley Publishers, 2010 9781849050272 (DLC) 2009017875 (OCoLC)319497306.