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Title Challenges and opportunities in using residual newborn screening samples for translational research : workshop summary / Steve Olson and Adam C. Berger, rapporteurs ; Roundtable on Translating Genomic-Based Research for Health, Board on Health Sciences Policy, Institute of Medicine of the National Academies.
Imprint Washington, D.C. : National Academies Press, [2010]
©2010

Subject Neonatology -- Research -- Moral and ethical aspects.
Newborn infants -- Diseases -- Diagnosis.
Translational Medical Research -- ethics.
Blood Chemical Analysis -- ethics.
Infant, Newborn.
Biomedical Research -- ethics.
Blood Specimen Collection -- ethics.
Public Health.
Neonatal Screening -- ethics.
Bioethical Issues.
Genetic Diseases, Inborn -- diagnosis.
Translational Medical Research.
Genetic Diseases, Inborn -- diagnosis.
Neonatal Screening.
United States.
United States.
Alt Name Olson, Steve, 1956-
Berger, Adam C.
Institute of Medicine (U.S.). Roundtable on Translating Genomic-Based Research for Health.
Institute of Medicine (U.S.)
Description 1 online resource (xv, 67 pages) : illustrations
Bibliography Note Includes bibliographical references.
Summary "Newborn screening samples are used to test more than 4 million infants each year for life-threatening diseases that are treatable if found at birth. These specimens also represent a potentially invaluable resource for public health and biomedical research. The IOM held a workshop to examine issues surrounding the use of residual specimens for translational research."
Contents Newborn screening as a public health program -- Uses of residual newborn screening samples in research -- Concerns about the use of residual newborn screening samples -- Review and consent in the use of residual newborn screening samples -- Parental and public education -- Workshop overview and wrap-up.
Note Print version record.
ISBN 9780309159555 (electronic bk.)
0309159555 (electronic bk.)
1282917137
9781282917132
0309159547 (pbk.)
9780309159548 (pbk.)
OCLC # 703277537
Additional Format Print version: Challenges and opportunities in using residual newborn screening samples for translational research. Washington, D.C. : National Academies Press, ©2010 0309159547 (OCoLC)668941942