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Title The public shaping of medical research : patient associations, health movements and biomedicine / edited by Peter Wehling, Willy Viehöver and Sophia Koenen.
Imprint Abingdon, Oxon ; New York, NY : Routledge, 2015.

Series Routledge studies in the sociology of health and illness.
Routledge studies in the sociology of health and illness.
Subject Medicine -- Research.
Biomedical Research.
Public Opinion.
Patient Advocacy.
Patient Participation.
Alt Name Wehling, Peter, 1954-
Viehöver, Willy,
Koenen, Sophia,
Description xviii, 290 pages ; 24 cm..
Bibliography Note Includes bibliographical references and index.
Contents A seat at the table, "a lab of our own" and working with what we know now : how the U.S. environmental breast cancer movement shapes research / Lori Baralt -- Initiating and funding medical research on a rare disease : the approach of the German Cystic Fibrosis Association / Andreas Reimann -- Eurordis : empowering patients living with rare diseases to participate in biomedical knowledge production / Christel Nourissier, Monica Ensini and Maria Mavris -- The entanglement of scientific and political claims : towards a new form of patients' activism / Madeleine Akrich, Orla O'Donovan and Vololona Rabeharisoa -- Obesity, the alternative food movement, and complete streets : new forms of "patient" activism and the evolution of health social movements / Mercedes C. Lyson and Stephen Zavestoski -- Autism, the Internet and medicalization / Peter Conrad and Catherine Tan -- A community fractured : Canada's breast cancer movement, pharmaceutical company funding, and science-related advocacy / Sharon Batt -- Beyond scientific controversies : scientific counterpublics, countervailing industries, and undone science / David J. Hess -- Interpellating patients as future users of biomedical technologies : the case of patient associations and stem cell research / Henriette Langstrup -- Patient organizations as biosocial communities? : conceptual clarifications and critical remarks / Thomas Lemke -- Changing contexts for science and society interaction : from deficit to dialogue, from dialogue to participation- and beyond? / Massimiano Bucchi -- The virtues (and some perils) of activist participation : the political and epistemic legitimacy of patient activism / Peter Wehling and Willy Viehöver -- The ethical legitimacy of patient organizations' involvement in politics and knowledge production : epistemic justice as a conceptual basis / Silke Schicktanz -- Conclusion : effects of and challenges to the public shaping of medical research / Willy Viehöver, Peter Wehling and Matthias Roche.
ISBN 9780415858236 (hbk)
0415858232 (hbk)
9781315741871 (ebk)
OCLC # 881019540