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BOOK
Title The public shaping of medical research : patient associations, health movements and biomedicine / edited by Peter Wehling, Willy Viehöver and Sophia Koenen.
Imprint Abingdon, Oxon ; New York, NY : Routledge, 2015.

LOCATION CALL # STATUS MESSAGE
 OTTERBEIN MAIN COLLECTION  R852 .P93 2015    AVAILABLE  LOCAL CIRC ONLY
LOCATION CALL # STATUS MESSAGE
 OTTERBEIN MAIN COLLECTION  R852 .P93 2015    AVAILABLE  LOCAL CIRC ONLY
Series Routledge studies in the sociology of health and illness.
Routledge studies in the sociology of health and illness.
Subject Medicine -- Research.
Biomedical Research.
Public Opinion.
Patient Advocacy.
Patient Participation.
Alt Name Wehling, Peter, 1954-
Viehöver, Willy,
Koenen, Sophia,
Description xviii, 290 pages ; 24 cm..
Bibliography Note Includes bibliographical references and index.
Contents A seat at the table, "a lab of our own" and working with what we know now : how the U.S. environmental breast cancer movement shapes research / Lori Baralt -- Initiating and funding medical research on a rare disease : the approach of the German Cystic Fibrosis Association / Andreas Reimann -- Eurordis : empowering patients living with rare diseases to participate in biomedical knowledge production / Christel Nourissier, Monica Ensini and Maria Mavris -- The entanglement of scientific and political claims : towards a new form of patients' activism / Madeleine Akrich, Orla O'Donovan and Vololona Rabeharisoa -- Obesity, the alternative food movement, and complete streets : new forms of "patient" activism and the evolution of health social movements / Mercedes C. Lyson and Stephen Zavestoski -- Autism, the Internet and medicalization / Peter Conrad and Catherine Tan -- A community fractured : Canada's breast cancer movement, pharmaceutical company funding, and science-related advocacy / Sharon Batt -- Beyond scientific controversies : scientific counterpublics, countervailing industries, and undone science / David J. Hess -- Interpellating patients as future users of biomedical technologies : the case of patient associations and stem cell research / Henriette Langstrup -- Patient organizations as biosocial communities? : conceptual clarifications and critical remarks / Thomas Lemke -- Changing contexts for science and society interaction : from deficit to dialogue, from dialogue to participation- and beyond? / Massimiano Bucchi -- The virtues (and some perils) of activist participation : the political and epistemic legitimacy of patient activism / Peter Wehling and Willy Viehöver -- The ethical legitimacy of patient organizations' involvement in politics and knowledge production : epistemic justice as a conceptual basis / Silke Schicktanz -- Conclusion : effects of and challenges to the public shaping of medical research / Willy Viehöver, Peter Wehling and Matthias Roche.
ISBN 9780415858236 (hbk)
0415858232 (hbk)
9781315741871 (ebk)
OCLC # 881019540